What happens to your data if 23andMe collapses? — Harvard Gazette

The uncertain future of 23andMe, a popular genetic testing company, raises concerns about the protection of its 14 million customers’ genetic data. While federal health privacy regulations like HIPAA do not cover direct-to-consumer companies like 23andMe, the Genetic Information Nondiscrimination Act prevents discriminatory use of genetic information. To address these concerns, experts propose expanding HIPAA’s scope or implementing broader data privacy protection laws.